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World Ophan Drug Congress Archive

How Should Pharma Navigate the Landscape of Compassionate Use?

Posted by | 10:22am on Wednesday, September 17, 2014 | No Comments
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we’ve created a white paper that summarizes the insights and experiences that were collected 

For companies that operate in the rare disease space, compassionate use policies are critical. Rare disease patients and caregivers are highly motivated to access treatments and they are skilled at using social media, online petitions, blogs, and videos to generate support. Maintaining good relationships with the patient community requires not only having a well-articulated policy for compassionate use, but also communicating about this sensitive topic in an effective way.

Siren’s workshop at the 2014 World Orphan Drug Congress (WODC) generated a rich and informative discussion about this timely issue, with experts providing the perspective of industry and advocacy groups. Panelists included Read More

WODC

Highlights from the World Orphan Drug Congress 2014

The World Orphan Drug Congress (WODC) brings together patient organizations and industry leaders, researchers and academics, members of the FDA…

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World Orphan Drug Congress

Highlights from the World Orphan Drug Congress 2013

A key theme of the World Orphan Drug Congress 2013 was the need to innovate when it comes to the…

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The Importance of Patient Advocates for Orphan Drugs

I attended the World Orphan Drug Congress last week in Washington, DC, and Siren presented the workshop, “A Roadmap for…

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What We Want From (Big) Pharma

We are honored to share this guest post from Melissa Hogan, founder of Saving Case. Melissa started the organization after…

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Takeaways from the World Orphan Drug Congress

The World Orphan Drug Congress last week consisted of three days jam-packed with presentations and networking. While the event focused…

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Saving Case at the World Orphan Drug Congress

I was part of the Siren team that attended the World Orphan Drug Congress last week in Washington, DC. On…

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Key Learnings from the World Orphan Drug Congress

Siren had the great opportunity to attend the World Orphan Drug Congress on April 13-15. For three days, we were…

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