A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

video and health care Archive

A Rare, Genetic Disorder And Comedy: A Natural Pairing?

Posted by | 11:56am on Wednesday, November 6, 2013 | 9 Comments
Stop the bleeding

It’s truly an inspiration to see a young man turn a tragic moment into a youth movement toward adherence 

You’ve heard the saying, “Laughter is the best medicine.” And in fact, laughter does have its emotional and physical health benefits. But what about laughter, or comedy, as a means to engage and educate those affected by a rare, genetic disorder? This was the vision of Patrick James Lynch, a severe hemophiliac and actor/writer/producer—and he made it happen.

Lynch and his brother were both born with severe hemophilia, a bleeding disorder that primarily affects males. While away at college, Lynch’s brother suffered a fatal bleed. A lax approach to his treatment regimen was discovered to be a contributing factor. From this devastating tragedy, Lynch found a calling—to use his personal experiences, acting talents, and entertainment industry connections to reach and educate young hemophiliacs on the importance of being adherent and proactive in their care. Read More

Life According to Sam Exemplifies the Power of Caregivers

When a rare disease project gets mainstream attention, it’s a big deal. Exposure to a wider audience can make a…

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YouTube: Channel Versus Individual Video

I’ve written before about the value of YouTube for pharma and this raised the question of whether you have to…


The Value of YouTube for Pharma

Video is an engaging way to educate patients and healthcare professionals. Per Manhattan Research: “1 in 2 ePharma consumers prefers…



Video and Rare Disorders

Social networking is big, but video is even bigger. An April 2009 survey by the Pew Research Center’s Internet &…

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