A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
SirenWired
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

#SocPharm Tweetchat Transcript 7/21/2010

Posted by | 4:44pm on Wednesday, July 21, 2010

:
Frieda Hernandez here from Siren Interactive. I’m the moderator tonite but almost didn’t make it! #socpharm 7/21/2010 19:09

:
@ Great to see you. I just got your vmail and there you are. #socpharm 7/21/2010 19:10

:
Well I guess we are on our own? So do yu think the FDA is doing enough to restore trust with consumers? #socpharm 7/21/2010 19:10

:
Hello Craig and Rich. Thanks for joining. Rich, let’s start with your question.#socpharm 7/21/2010 19:12

:
T1: Do you think the FDA is doing enough to restore trust with consumers? #socpharm 7/21/2010 19:14

:
@ I agree trust is a long road but they need to become more consumer friendly their website is a usability disaster #socpharm 7/21/2010 19:14

:
So much of the govt is influenced by private interest that its hard to trust much. Some better separation of sectors is needed. #socpharm 7/21/2010 19:14

:
@ Fair but what do you think of their social and rich media forays? #socpharm 7/21/2010 19:15

:
I’m not sure that the FDA can restore public trust alone if we are referring to trust in the pharma industry #socpharm 7/21/2010 19:15

:
@ Not sure I mean its a good start but people dont engage SM until they feel trust is there #socpharm 7/21/2010 19:16

:
What more do you think they can do? #socpharm 7/21/2010 19:16

:
I guess I keep reading the stories about drugs that have been on market for years now linked to this or that #socpharm 7/21/2010 19:17

:
T1: Does anyone have stats on how many consumers visit FDA websites and what information they’re looking for there? #socpharm 7/21/2010 19:17

:
There are those that believe no drug is safe until it has been used by a lot of people over time #socpharm 7/21/2010 19:17

:
these links are the progress of science, no? at the time and with the methods of those times they were fine, no? #socpharm 7/21/2010 19:18

:
i’m not sure ppl dont engage until their is trust but they engage to see if trust is warranted, yes? #socpharm 7/21/2010 19:18

:
@ What’s your solution? #socpharm 7/21/2010 19:19

:
Okay, but the diseases those unsafe drugs treat are even less safe, no? #socpharm 7/21/2010 19:19

:
@ First I think they have to become more consumer friendly with their website and other materials #socpharm 7/21/2010 19:19

:
@ Hey! Cool that you’re moderating #socpharm. In case anyone doesn’t know me: Lexie from Ketchum Digital here! How is everyone? 7/21/2010 19:20

:
@ Then I think they really need to educate the public on drug approval process & safety to reassure them #socpharm 7/21/2010 19:20

:
@ Customer friendliness is a competency we can all do better at. Do u really think the public has interest in this ed.? #socpharm 7/21/2010 19:22

:
@ I believe the public is looking for answers because we aging population and all have to rely on Rx #socpharm 7/21/2010 19:22

:
I agree RT @: Then I think they really need to educate the public on drug approval process & safety to reassure them #socpharm 7/21/2010 19:23

:
@ Welcome, Lexie and please jump in on whether the FDA is doing enough to restore public trust #socpharm 7/21/2010 19:24

:
@ ppl will engage if given the opportunity. but they dont like being sold on anything so has to be genuine #socpharm 7/21/2010 19:25

:
@ People are asking “what’s worse the disease or the drug side effects ?” #socpharm 7/21/2010 19:25

:
What if all the people taking a statin discover 2-3 years from now that there is link between drug and more serious health cond #socpharm 7/21/2010 19:26

:
The FDA needs to explain about “unpublished” studies that are picked up by the media #socpharm 7/21/2010 19:27

:
@ and they should ask. they should also take more responsibility for the choice they make to bear disease or side effects #socpharm 7/21/2010 19:27

:
If drug safety is the trust issue, then I think the FDA does have an educational responsibility. Pharma must behave ethically too #socpharm 7/21/2010 19:27

:
@ this discovery would be no different than those we find with food, water and air. #socpharm 7/21/2010 19:27

:
@ They are doing that by not taking their drugs abandonment is up #socpharm 7/21/2010 19:27

:
RT @: @ ppl will engage if given the oppty. but they dont lk being sold on anything so has 2 B genuine #socpharm 7/21/2010 19:28

:
There is too many unpublished bad studies that are being sensationalized by the media #socpharm 7/21/2010 19:28

:
@ Welcome! #socpharm 7/21/2010 19:28

:
RT @: If drug safety is the trust issue, then I think the FDA does have an educational responsibility. Pharma must behave ethically too #socpharm 7/21/2010 19:29

:
@ Not to patients it isnt #socpharm 7/21/2010 19:29

:
@ what makes the studies bad most times? #socpharm 7/21/2010 19:29

:
@ Not peer reviewed mostly #socpharm 7/21/2010 19:30

:
@ what responsibility does the public have to be student to this education? #socpharm 7/21/2010 19:30

:
@ Why are bad studies going unpublished? That is the media’s responsibility to investigate. #socpharm 7/21/2010 19:30

:
lack of efficacy, and SAE’sRT @: @ what makes the studies bad most times? #socpharm 7/21/2010 19:31

:
@ but I submit it should be. we tolerate & contribute to bad food, water and air and then worry about drug side effects. #socpharm 7/21/2010 19:31

:
@ Problem is that media likes to sensationalize not fact. Pharmalot did lot of damage to Avandia with unpublished #socpharm 7/21/2010 19:32

:
@ we too often fear the wrong thing. or lack sufficient fear of the more important thing. #socpharm 7/21/2010 19:32

:
@ its not FDA’s role to restore public trust but I do think they should be more transparent to inspire trust #socpharm 7/21/2010 19:33

:
read what physician had to say http://is.gd/dyf82 #socpharm 7/21/2010 19:33

:
Time for T2: @ recently asked if America needs a Patient-In-Chief? #socpharm 7/21/2010 19:34

:
The NY Times for example has had an ax to grind with pharma for long time..remember they were slapped on Zyprexa story #socpharm 7/21/2010 19:34

:
@ we the public should buy less media sensationalism. ppl have always had trouble thinking objectively for themselves. #socpharm 7/21/2010 19:34

:
RT @: @ we too often fear the wrong thing. or lack sufficient fear of the more important thing. #socpharm 7/21/2010 19:34

:
Agreed RT @: @ its not FDA’s role 2 restore public trust but I do think they shld B more transparent 2 inspire trust #socpharm 7/21/2010 19:35

:
@ Problem is headlines=reality who has time to really dive into facts #socpharm 7/21/2010 19:36

:
@ problem is that we do not suspend judgment until we have sufficient facts. the media does what we reward. #socpharm 7/21/2010 19:37

:
RT @: Time for T2: @ recently asked if America needs a Patient-In-Chief? #socpharm 7/21/2010 19:39

:
@ what would role of Patient General be? #socpharm 7/21/2010 19:40

:
When it comes 2 issues of trust, regulatory oversight, etc. do we rlly do enough 2 make ths industry transparent 4 patients? #socpharm 7/21/2010 19:41

:
@ Not at all Frieda but I think a lot of that is because of legal and blood sucking lawyers who sue #socpharm 7/21/2010 19:43

:
@ I think to demystify things like drug safety, approval process, take this industry out of the ivory tower of “experts” #socpharm 7/21/2010 19:43

:
If anyone wants a copy of the Rodale DTC study report email me at richardameyer@me.com #socpharm 7/21/2010 19:44

:
T2: As a caregiver for my father, I would be lost if I didn’t know a lot about the medical/pharma industrial complex #socpharm 7/21/2010 19:46

:
O.K. feels like we’re really getting heavy tonight so on to T3 if all of you’re ready #socpharm 7/21/2010 19:48

:
@ yes, and unfortunately i think most of the populace is lost when it comes to health understanding. #socpharm 7/21/2010 19:48

:
T3: What do you think are the elements of success for engaging patients in an online community and do you have examples? #socpharm 7/21/2010 19:50

:
@ That is happening to a lot of people Frieda #socpharm 7/21/2010 19:52

:
T3: What not to do RT @ 7 Deadly Sins of Healthcare Social Media http://bit.ly/bLpx8N #socpharm 7/21/2010 19:55

:
@ Thanks, Lexie. That’s a good one too re: #socpharm integration, segmentation. But hard to say as a general rule. 7/21/2010 19:57

:
@ Different homepage for every segment #socialmedia #pharma #socpharm 7/21/2010 19:58

:
@ As for social media FDA would not take kindly as since it on website it could be considered endorsement #socialmedia #pharma #socpharm 7/21/2010 19:58

:
Thanks everyone for joining tonite. I’m a sad replacement for @ but loved engaging with you as always #socpharm #socpharm 7/21/2010 20:03

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications.

View other posts from Eileen

Siren Interactive
  • Siren Interactive
  • Rare Disease Relationship Marketing Experts
  • 626 West Jackson Blvd, Suite 100
  • Chicago, IL 60661
  • 312.204.6700
  • 866.502.6714 (Toll Free)
  • www.sireninteractive.com