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#SocPharm Tweetchat Transcript 2/3/2010

Posted by | 9:54pm on Wednesday, February 3, 2010

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Welcome to #SocPharm pharma marketing & social media tweetchat. Let’s start w/intros & why you are interested in this topic.

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I’m Eileen, work for Siren Interactive where we focus on chronic rare disorder therapies. SM is a wonderful tool for this audience #socpharm

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We’ll assume that all tweets within #socpharm are your own and not your employers (unless you specifically declare them)

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Hey E! #socpharm

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@ I’m so glad you were able to join us as topic 1 will relate to you! Introduce yourself. #socpharm

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@ here. #socpharm

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@ #socpharm is what’s happening!

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so what are we talking about tonight? #socpharm

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Frieda Hernandez of Siren Interactive hre, lk @ ive a special interest in the application of soc med 2 #raredisease #socpharm

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DJ Edgerton. CEO of Zemoga, Digital Innocation Firm. Co-Founder of Pixels & Pills. #socpharm

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@ @ Welcome to #socpharm.

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Awesome. So, I’ll be sure to let everybody know that #iwork@novartis if it’s relevant and just #socpharm for everything else :)

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T1: @ launched cool “Health Tweeder” which monitors Tweets by disease statehttp://bit.ly/bUWPaA What do u think? #socpharm

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#socpharm craig delarge from novo nordisk CRM!

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Blausen Group, special interest in medical education and mobile & web applications #socpharm

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Innovation…..ha …#socpharm

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@ Topic 1: Can u explain how you are gathering the tweets that are counted in the petri dishes? Is there a date range? #socpharm

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RT @: @ #socpharm is what’s happening!

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hi all–just joining myself…RT @: @ @ Welcome to #socpharm.

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@ petri dishes remind me of graduate school :-) #socpharm

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Kathy Mackey listening in the #socpharm and the new Health Tweeder” tweets by disease statehttp://bit.ly/bUWPaA

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@ @ Hi Kathy & Ellen, thanks for joining #socpharm

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T1 Terminology is more hcp than patient focused. Who’s tweeting? #socpharm

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We leverage the Twitter API and developed an app that “scrubs” out the junk (most) Currently over 2000 terms/Hash’s /Users #socpharm

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T1 That’s what I think we are all trying to get at: who on Twitter is talking about these health conditions? #socpharm

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Currently the API only allows 150 Queries every hour…1500 in a few weeks with the new API release….more robust to come #socpharm

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Would be neat to filter industry and patient tweets by disease state as a comparison of content #socpharm

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@ Q: How do you determine what text goes into which bucket? Can I break out CF from COPD? #socpharm

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It has had about 18,000 uniques in a day….well beyond what we expected. #socpharm

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@ some of my fondest memories are of graduate school #socpharm

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Impressive, clearly we r all interested! RT @: It has had about 18,000 uniques in a day….well beyond what we expected #socpharm

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Palio, our collaboration partner worked with the Zemoga dev’s to create the criteria for key word bucket location. #socpharm

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good pt–each indication is different and specialized vs let’s say psychiatry…RT @: Can I break out CF from COPD? #socpharm

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It certainly is an improvement to be able to see immediate comments on a disease state. Great for focus groups and more #socpharm

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@ Q. Will the numbers in the petri dishes be daily? Or is there some date range? #socpharm

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This is a work in progress…we are open to adding more Keys’s based on crowdsourcing the relevent terms…etc. #socpharm

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as a card carrying microbiologists i love the petri dish, can infectious diseases be segment into viral v bacterial? #socpharm

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It updates every hour…so the dishes and the rank are organic and change by activity volume #socpharm

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@ T1 This is an awesome tool… I hope you realise that we’re all digging this. #socpharm

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im lurking…just listening in… #socpharm

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RT @: as a microbiologist i love the petri dish, can infectious diseases be segment into viral v bacterial? Very neat idea #socpharm

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We are big fans of data visualization. Engagement by design #socpharm Thx @

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@ Very cool, thanks for answering our questions! #socpharm

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@ Hi Stephen, thanks for joining #socpharm tonight.

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T2: UCB sponsored epilepsy site on @: http://bit.ly/aI0cYo What do u think? Way forward 4 pharm sm 2 partner w/org? #socpharm

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@ I hope you realise that we are enjoying doing this. Innovation is fun. #socpharm

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@ Q Are the data being stored anywhere so I can see volume changes? #socpharm

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@ viruses don’t grow on agar :-) #socpharm

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@ this is fantastic, a great research tool, thx! #socpharm

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@ I was retweeting… :) only… #socpharm

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@ Yes., value at some point. It is dumped right now…so not “viewable”…our plan is a dashboard. #socpharm

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@ there are real infectious agents in the petri dishes, oh my! #socpharm

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@ T2 Farming out the community makes sense, IMHO. Given the object is to keep the community alive after the plan ends. #socpharm

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In my experience, partnering w/ patient org is great way to help introduce pharma into SM. Cautious intro for meg/legal #socpharm

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I don’t have the url but the diabetes website that shows geolocated tweets is very impressive too. #socpharm

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@ Good point, it allows the community to live on perpetuity even after specific co project is over. #socpharm

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i agree. it is very impressive. Pretty neat. #socpharm

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T2 PLM seems to have a balanced value prop for patients and industry. As long as they are transparent, seems like a good model #socpharm

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T2 If Big Pharma starts a community to coincide with a mktg plan, the cycle ends, you don’t wanna leave the community in the lurch #socpharm

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@ I haven’t heard about that one. I’ll have to look for it. #socpharm

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@ I was impressed with tweeder (tweeted it a bunch of time). So. What inspired it? What’s your goal with it? #socpharm

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@ T2 Q: How does pt. org. participate in PLM? Wasn’t aware of that aspect #socpharm

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what do we think UCB’s obj is since it looks tobe hands off? To demo real patient value vs generics? T2: UCB sponsored epilepsy #socpharm

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@ Sorry for confusion, I should’ve been clearer. Working w/outside organizations makes it easier for pharma to do sm #socpharm

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RT @: @ I was impressed with tweeder So. What inspired it? What’s your goal with it? #socpharm

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T2 Do we know what secondary data are being gathered by PLM? Is that the value of having them run the site? #socpharm

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Agreed RT @: @ sry 4 confusion, I shld’ve bn clearer. wrkn w/outside orgs makes it easier 4 pharma 2 do sm #socpharm

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Goal is to illustrate API use and the P&P collaboration. We were ust shooting the industry Sh&t …and thought…why not? #socpharm

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But what SM is UCB doing? thought just collecting data? RT @: Working w/outside organiz easier 4 pharma to do sm #socpharm

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@ depends on how pharma “works” with outside orgs #socpharm

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@ I think that’s not necessarily the case. SM progs associated w/ a brand or a corp r still the corp’s responsibility #socpharm

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Wish I could participate in #socpharm tonight! Seeing great tweets and Q’s, but in transit from phila to NY and can’t keep up!!

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Peeps.I’m at NYSM Week event with Mashable and about to go onstage.,…gotta bolt. Thx for support. Let’s all innovate!! #socpharm

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@ By sponsorship UCB is enabling epilepsy community. Sort of SM by proxy. #socpharm

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@ They collect & report data, handle AE reporting. Pts R willing 2 share a lot of data 2 participate in comm & connect #socpharm

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#socpharm RT @: @ @ my goal is to take the idea and apply it to search. It will be done. Oh yes.

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@ T2 So, all that UCB is doing is funding/sponsoring? UCB’s not getting any of the data for analytics? Or do we know? #socpharm

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open Epilepsy fourm w/UCB read the press release http://bit.ly/cnwCak RT @ what SM is UCB doing? just collecting data? #socpharm

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T2 From pt. perspective PLM is like Match.com for disease. Find and connect w/someone like you within specific parameters #socpharm

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@ Pharma sponsors get anonymized data #socpharm

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T3: @?s post talks patient prescription med rating site iGuard: http://bit.ly/ah3hKX What do u think of these sites? #socpharm

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thanks! RT @: open Epilepsy forum w/UCB read the press release http://bit.ly/cnwCak RT @ what SM is UCB doing? #socpharm

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.@ellobrien Finally found the cool #diabetes site with geolocated tweets.. http://bit.ly/7qi3O6#socpharm

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sorry i fell a bit behind here. juvenation.com is an interesting pat org partnership nni has ventured in SM #socpharm

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T3: Can/should pharma somehow utilize patient rating prescription drug sites? #socpharm

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educate me. what is PLM? #socpharm

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@ UCB has transparent involvement in the forum w/patients & they plan to use their input to inform comm. back to them #socpharm

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T3 : As a data junkie, I think the consolidation of the difference results is helpful… It’s a good start #socpharm

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anyone know how UCB patientlike me play going? oh, now i get what PLM is. duh! #socpharm

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Thanks! This is fascinating. RT @: .Finally found the cool #diabetes site with geolocated tweets. http://bit.ly/7qi3O6 #socpharm

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@ thanks for the retweet! Forgot the #socpharm tag. So SM by proxy I think is a valid approach as part of a holistic plan.

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@ Patients Like Me #socpharm

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@ We were talking about @ (PLM!) #socpharm

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at H2.0 conference PLM talked about implications of PLM data bank for conduct on clinical studies. it was compelling idea. #socpharm

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@ T3 While more data can be helpful, what do you mean by “utilize patient rating…” #socpharm

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thx @: UCB has transparent involvement in the forum w/patients & they plan to use their input to inform comm. #socpharm

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@ what is the academic researchers take on this form of study? #socpharm

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@ I agree & think it’s amazing that so many people take time to contribute such detailed med info on sites like iGuard #socpharm

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@ ur point about SM not being tied to marketing plan cycle is valid as this is a continuous not an episodic medium. #socpharm

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@ this is a good point you make about how the academy will adapt to this approach. time will tell. #socpharm

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think patient ratings r step in the right direction and as the numbers increase will be more and more helpful @: T3: #socpharm

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Just throwing out question RT @ @ T3 While more data can b helpful, what do u mean by “utilize pt rating” #socpharm

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@ : I’m trying to start gathering some of my own data into Google Health… a surprising amount of my data. #socpharm

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@ fabio gratton & incendia studios has done good work in preserving communities that pharmas have started & stopped. #socpharm

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@ I’ve collected some of my own health data online in the past & it can be incredibly time consuming. #socpharm

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@ T3 Just wondering if u had a specific intent. I woudn’t think Big Pharma should be using the data to target patients #socpharm

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T3 Health & safety rating more important than buying a dress. BTW Alli risk rating is on holdhttp://bit.ly/aNqBDN #socpharm

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Tell us more? @: I’m trying to start gathering some of my own data into Google Health… a surprising amt of my data. #socpharm

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@ @ why are you using Google Health versus MS HealthVault? #socpharm

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@ : Just when you realise how many doctor appointments you’ve had, it gets to be a lot of data quickly. #socpharm

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Have to admit it is a refreshing update to collect your personal health data online as opposed to paper files and boxes #socpharm

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Is it more useful if can compare vs norms? vs just tracking urself? @: @‘ve collected myown health data #socpharm

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@ use of data should be less about targeting patients than about aiding drug & health services development. #socpharm

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@ : I’ve done some research, and the general concensus seemed to be that GH was more long term user friendly #socpharm

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Just learned today a/b Healthcare Tweeder to visualize HC tweets, powered by @://bit.ly/aKnW6c #smwhealthcare #socpharm

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a more educated patient! RT @: Just when you realise how many MD appoint you’ve had, it gets 2 be alot of data quickly #socpharm

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@ I did this years ago & it was on MS Health Vault but abandoned it. I should probably go delete my record! #socpharm

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@ : On a deeper part, Google has worked hard to create a consistent brand look and feel and I like that better #socpharm

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T3 Where’s @ when we need him re: collecting personal health data #socpharm” target=”_blank”>http://bit.ly/BCdf#socpharm

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I wonder how many abandoned PHRs there are out there in the Interwebs? #socpharm

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@ : Agreed. I think 23andme.com and GH (from what I’ve read) *are* working to help create some health trend data like PLM #socpharm

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I just did a PHR as an overall experiment, no reflection on MS HealthVault. Eventually forgot about it. #socpharm

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@ Yes, I am using Google Docs, Voice, gMail, youtube, blogger and googlegroups. GH is a small further step eh? #socpharm

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Thanks everyone for another great #socpharm. Hope to see u again next Wed at 8 pm est for stimulating convos on pharma marketing & sm.

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@ Personal health record becomes more compelling with a serious illness #socpharm

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Very true. RT @: @ Personal health record becomes more compelling with a serious illness #socpharm

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Thank you again @ et al on #socpharm

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This is fun, and fast! I will try to make it next week also. #socpharm

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@ thx for the coordination on #socpharm tnt- sorry I missed first 45 minutes! damn social media week events (& my bronchitis!)

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@ . @: Personal health record more compelling with a serious illness #socpharm check out http://bit.ly/a8RBwn

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@ Glad you joined us. @ keeps it moving and great contributions from all #socpharm

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RT @: I wonder how many abandoned PHRs there are out there in the Interwebs? #socpharm

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@ Nothing yet. What types of incentives do other companies give out for PHRs? #socpharm

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@ Don’t know, I was just curious :) You should join us for #socpharm tweetchat on Weds at 8 pm est.

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T3: Can/should pharma somehow utilize patient rating prescription drug sites? #socpharm /via @ <-- yes!!

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@ so sorry I missed #socpharm was at dinner, missed lunch so v hungry!!

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications.

View other posts from Eileen

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