A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
SirenWired
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

#SocPharm Tweetchat Transcript 1/13/2010

Posted by | 4:30pm on Wednesday, January 13, 2010

:
Welcome! Let’s start w/intros. I’m Eileen & work for Siren Interactive. We focus on rare disorder therapies. #socpharm

:
Hi Eileen. I’m John O’Brien, Pharmacy and Public Health Policy Professor by day, ehealthgeek and journalist wannabe by night. #socpharm

:
Mark I am involved in medical education, adult learning and applying those principles to communications strategies. #SocPharm

:
Hi @ thanks for joining us #socpharm

:
Hi Eileen, I’m having some problems with TweetDeck. testing. #socpharm

:
Topic 1: What’s ur view of new FDA Transparency Initiative & FDA Basics info? http://bit.ly/7eHiKP #socpharm

:
@ Also having problems getting WTH to accept my account. Am here in spirit tonight #socpharm

:
Hi @ & @ – you can always try tweetchat! It’s slow but working. #socpharm

:
T1: putting a happy face on an agency getting more public attn & establishing itself as THE source of online dg/device safety info #socpharm

:
T1: FDA execs were also darn near “warm and friendly” at the recent FDA Sentinel public mtg #socpharm

:
@ Do you think the info they are providing is useful to the average consumer? #socpharm

:
Hi Eileen and all. Frieda Hernandez here, just joined the chat #socpharm

:
IMHO they could do more explaining WHY drugs need to be approved before going into the weeds of HOW, etc #socpharm

:
Tweetchat is working for me. I think the FDA Trans Initiative offers a great place to learn, but how can we help others use it? #SocPharm

:
can’t ever imagine a consumer needing to understand the warning letter process! #socpharm

:
Topic 1: What’s ur view of new FDA Transparency Initiative & FDA Basics info? http://bit.ly/7eHiKP #socpharm

:
Hi all. Can’t get in with WTH. Sorry I’m late! #socpharm

:
@ But there are other bits and pieces that offer consumers with the wear with all knowledge. #SocPharm

:
@EileenOBrien Thanks, Eileen. Am in with Tweetchat! #socpharm

:
No worries @! As @ told me last week, “Twitter is not a dial tone, it can’t be relied upon!” #socpharm

:
@EileenOBrien Hi Eileen. My ?: Is the FDA really the right group to deliver health/drug literacy to consumers vs. HC providers? #socpharm

:
Shhhh! I’m lurking in #socpharm from the bath between @ and the dinner, sorry guys!

:
Agreed!RT @: IMHO they could do more explaining WHY drugs need to be approved before going into the weeds of HOW, etc #socpharm

:
@ I think consumers might want to be aware of all efforts that are necessary to ensure a safe medication #socpharm

:
@ As a marketer I would use what the FDA has as a way to reassure consumers that checks and balances are in place #SocPharm

:
@ Are most HC providers motivated and incented to provide health literacy #socpharm

I agree #SocPharm

MarksPhone” target=”_blank”>Mkmackey @ I agree #SocPharm

MarksPhone:
@ I think their view of of health literacy is limited they want to frame it around their area of clinical interest #SocPharm

:
Welcome @ to #socpharm #socpharm

:
“health literacy” is way too broadly construed and means diff things to different people. Almost need new pt engagement lexicon #socpharm

:
@friedah03 I’m no healthcare billing expert, but as I recall there are CPT Codes and HCPC Codes for patient education. #socpharm

:
@ Yes and have a time deficit even for that level of education with patients. FDA plays a role #SocPharm

:
Does anyone know if the FDA does any hearings or research to ensure that fair balance/ISI is clear and concise and understandable? #socpharm

:
@ Do you have a link to video? #socpharm

:
There are code for billing some pat ed. I know Medicare limits pat ed for Type 2 diabetes each year. Not enough for most pts #socpharm

:
FDA’s Jenkins: FDA communicated for years through labeling. While label important…its not a very good way to communicate #socpharm

:
I like the idea of “The Commons”, FDA providing a public place to aggregate information on drugs is akin to a public park. #socpharm

:
Topic 2: What do u think about GSK funding a documentary on eating? http://ow.ly/TE9k #socpharm

:
Regulation of SM seems useless if the FDA doesn’t know how consumers understand the FB/ISI..is it demanding safety out of context? #socpharm

:
@friedah03 http://www.fda.gov/AboutFDA/Basics/ucm192696.htm #socpharm

:
In my view patient education is not limited to face time. It can be a well done md web and smart TM all outsourced #SocPharm

:
Re GSK: depends on how it’s produced. Xenical was my 1st product launch – tough sell for non-compliant pts who want quick fix #socpharm

:
RT @: Agree about “health literacy” and pt. engagement lexicon #socpharm

:
@friedah03 The Jt Commission likes to see active patient ed programs. Real-time, authoritative drug info for patients seems key. #socpharm

:
T2: We need more science-based education packaged in pop culture & reinforced by health profs @ should make a teachers guide #socpharm

:
patient physician communications and learning is about trust and problem solving, what problems do patients want to solve #SocPharm

:
for most chronic diseases, patient apathy is growing. Most diabetes patients never use pt ed benes offered by insurance #socpharm

:
@EileenOBrien #socpharm The GSK documentary strikes me as disingenuous and wrong.

:
@ Hi Chris. R u referring to the FDA needing to find a human voice? #socpharm

:
@ How about GSK funding a diet adherence program for patients instead of an edu-mercial? #socpharm

:
@ What abt that new movie GSK/alli is going to produce about obesity? Is that patient education? #socpharm

:
do any of you have stats on how many pts take meds w/o any research on product, side effects, etc? #socpharm

:
@ It’s a great 1st step, but still needs to find human voice. Hope that will come in time. #socpharm

:
@ I think HCPs better equipped to provide drug info on real-time, contextual, matched to learning prefs of pt basis #socpharm

:
@ My initial reaction to GSK funding a movie is discomfort on an emotional level, it really depends on how it’s done. #socpharm

:
RT @: @ How about GSK funding a diet adherence program for patients instead of an edu-mercial? #socpharm

:
Patient edu should be considered participatory medicine, physicians and patients participating in learning and HC #SocPharm

:
@EileenOBrien exactly. They’re still coming off as well-meaning bureaucrats. Guys in suits. #socpharm

:
@ Depends on how GSK approaches. Definitely not done w/out analysis of ROI. Personally, I don’t like the idea #socpharm

:
RT @ My initial reaction to GSK funding a movie is discomfort on an emotional level, it really depends on how it’s done. #socpharm

:
@ I agree GSK like all pharma is smart, this is not your we’re nice guys, they know what they are doing. #SocPharm

:
I think the Alli website contains a diet adherence program if I am not mistaken. @ @ #socpharm

:
@ diet adherence program funding? Great idea. #socpharm

:
Good pt RT @ Tthink HCPs better equipped 2 provide drug info on real-time, contextual, matched 2 learning prefs of pt basis #socpharm

:
@ guy in a suit was my answer :) #socpharm

:
@ and it was such a good answer, I had to use it too.:-) #socpharm

:
@ and by HCP u don’t mean the 75% of PCPs claiming to be overworked or the 40% needing more time for visits? #socpharm

:
I am former GSK prior to direct to consumer advertising and have always appreciated their interest in helping patients worldwide #socpharm

:
RT @: RT @: Health literacy at the pharmacy counter http://bit.ly/6YoaXp #hcmktg #health2.0 #socpharm

:
Yes 4 ne1 RT @ I think the Alli website contains a diet adherence program if I am not mistaken. @ @ #socpharm

:
@ Alli website does try to inform credibly on diet adherence stuff…but tied to using Alli in most messages. #socpharm

:
Srsly, I don’t expect FDA to use slang or l33tsp33k, but a slightly less stodgy tone would help. #socpharm

:
T 3: Agree w/2010 @ prediction? Branded/socially enabled tools will b more common, apps using crowdsourcing/location #socpharm

:
@jilliantate Not sure why a private company producing what is in effect a public service announcement feels kind of wrong. #SocPharm

:
@PharmAdvocate Maybe PCPs need more communication modes w/ willing patients vs. relying solely on office visits? #socpharm

:
@ without a doubt || Maybe PCPs need more communication modes w/ willing patients vs. relying solely on office visits? #socpharm

:
I’ve supported and valued pharma but pat. edu is specific to clinical interest. I believe we and pharma need to help them improve #SocPharm

:
@ChristianeTrue Agreed, I think a more engaging design that makes it easy to see FDA information at a glance would be good too. #socpharm

:
continued…improve the way they educate, better programs, needs assessments, and understanding problems that need to be solved #SocPharm

:
Do we prefer gov’t guy in a suit or big pharm financed documentary?#socpharm

:
@chiah How about an FDA prescription label direction decoder? ;–) Esp for complex date/time if/then directions. (Kidding) #socpharm

:
PCPs don’t have time to engage pts to the extent needed. Docs used to say they would address most serious problems/visit only #socpharm

:
RT @: @ w/out a doubt || mayB PCPs need more comm modes

:
@ friedah03 i prefer the $500M consumer campaign on prevention & wellness in the health reform bill paying us all to do it better #socpharm

:
T3: Agree w/2010 pharma prediction? Branded/socially enabled tools will be more common, like apps using crowdsourcing/location. #socpharm

:
@ddwebster Aren’t we all non-adherent wrt diet at one time or another? #socpharm

:
@friedah03 Is the question “Can the government be hip?” I think there have been some European governments w/ edgy sites re: health #SocPharm

:
Dental industry did well on prevention.. with the economy as it is, I am not so sure medical will be as successful #socpharm

:
T3: Yes but hope it’s leans towards “I’m looking for a run partner/healthy fast food tip” over “you’re near your next flu shot” #socpharm

As someone who was desperately trying to get a flu shot this year flu shot geolocator that would’ve helped me. #socpharm

Pharmadvocate @ Wake me when we get to GeoLocated flu shot reminders IF PHR shows I’m highrisk, unvaccinated, and near a pharmacy. #socpharm

Pharmaguy @ I’d compare the new movie to the PBS one GSK sponsored (“Fat”) which emphasized surgery & talked very little about drugs.

Tstitt @ So you’re a crazy radical advocate of participatory medicine, personal hlth responsibility & realistic outcomes? #socpharm

PharmAdvocate” target=”_blank”>Eileenobrien @ As someone who was desperately trying to get a flu shot this year flu shot geolocator that would’ve helped me. #socpharm

Pharmadvocate @ Wake me when we get to GeoLocated flu shot reminders IF PHR shows I’m highrisk, unvaccinated, and near a pharmacy. #socpharm

Pharmaguy @ I’d compare the new movie to the PBS one GSK sponsored (“Fat”) which emphasized surgery & talked very little about drugs.

Tstitt @ So you’re a crazy radical advocate of participatory medicine, personal hlth responsibility & realistic outcomes? #socpharm

PharmAdvocate:
@ thanks for writing my new resume and linkedin headline!!! #socpharm

:
Hope to “see” you next week. RT @: @ Thanks for hosting tonight – great questions! #socpharm

:
@ T3 Agree tools must be more targeted, personalized, easier to use #socpharm

:
@ T3 Crowdsourcing needs well informed crowds. Freebee prediction markets, eh – fun but skew-ey. #socpharm

:
@friedah03 For me, I would find a government initiative more credible than one funded by a corporation. #SocPharm

At Siren we deal with rare diseases, harder to find HCPs that treat than tiny patient populations. #socpharm

EileenOBrien” target=”_blank”>Friedah03 @ At Siren we deal with rare diseases, harder to find HCPs that treat than tiny patient populations. #socpharm

EileenOBrien:
Thanks for participating in #socpharm tonight. See u next Wed 1/20 at 8 pm est. Plse send me topics for next week.

:
I think we broke Twitter search. Tx for participating @ @ @ @ @ @ @ #socpharm

:
@ Me too #SocPharm

:
@ lol #socpharm

:
@ Congrats again for your bravery in joining the wild world of Twitter hashtag conversation community moderators. #socpharm

:
@ Yes, you rock, Eileen #socpharm

:
@ Think Twitter search has been having fits. Thanks for hosting the #socpharm chat, great questions for stimulating thoughts!

:
Thank you, Eileen! #socpharm 2010 21:19

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications.

View other posts from Eileen

Siren Interactive
  • Siren Interactive
  • Rare Disease Relationship Marketing Experts
  • 626 West Jackson Blvd, Suite 100
  • Chicago, IL 60661
  • 312.204.6700
  • 866.502.6714 (Toll Free)
  • www.sireninteractive.com