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#SocPharm Tweetchat Transcript 10/19/2011

Posted by | 10:03pm on Wednesday, October 19, 2011

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Welcome to the #socpharm tweetchat! Say hello

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Here w/ @: – live #socpharm after great dinner and drinks!

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here from Novo Nordisk but not speaking on their behalf. :-) #socpharm

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Hello #socpharm folks. I work for @ but am also personally interested in the e-patient movement.

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As always, we’ll assume #socpharm comments are private views not representative of company.

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coming in late – but not as late as I had feared! Media/comms consultant, in addition to #epatient + author of Cancer for Xmas #socpharm

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Frieda Hernandez here from Siren Interactive joining #socpharm

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Hi All – Chuck from Siren joining the conversation. #socpharm

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Would love to ask 2 questions: what p***es you off about pharma? what would you personally change for … change? #socpharm

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T1 want to talk about Patient Digital Rights: http://t.co/fau7Tgrv #socpharm

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@ are you at digital pharma east this week? #socpharm

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Hi #socpharm !

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@ not at #digpharm but @ can fill us in on key topics… #socpharm

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@: Welcome! Glad that @ is tuning into #socpharm tonight! I’m excited to discuss the epatient bill of rights #socpharm

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@: I like that question! #socpharm

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@: what do you want to know/ask/comment on? #socpharm

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@: I ask ‘cos I’m preparing to work on a white paper w/@JaneChin about pharma change from pt + pharma perspective #socpharm

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@: Is our 1st question/topic: What are our thoughts on the #epatient bill of rights? ~> http://t.co/VKkhU6yO #socpharm

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@: let’s make that topic 2 for discussion. Let’s talk pt rights first #socpharm

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@ @ If you’re free right now; a #socpharm chat is occurring and the topic is the ePatient bill of rights!

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@: @ it is – I’m just good at hijacking convos ;) #socpharm

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So, what I’m thinking is – with the ePBoR how can we get medical institutions to respect them systemically? #socpharm

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A patient bill of rights should be adapted/adopted beyond the U.S., too. #socpharm

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RT @: : A patient bill of rights should be adapted/adopted beyond the U.S., too. WERD! #socpharm

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I agree completely. RT @: : A patient bill of rights should be adapted/adopted beyond the U.S., too. #socpharm

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@: I heard my name… #socpharm

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@: join the scrum! #socpharm

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Sorry I’m on my phone – can’t get laptop wifi so having technical difficulties #socpharm

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@: didn’t know this chat was on ’til @ tipped me off this afternoon #socpharm

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T1: Does everyone agree on the key points in ePBoR’s? Shared access to data, mutual respect, Patient #1 stakeholder, transparency #socpharm

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I think the 2 biggest hurdles are standardization (esp for “shared access to data”) and HIPPA compliance #socpharm

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I like the Patient Bill of Rights. I am concerned though for those not interested in being such patients. Sigh. #socpharm

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RT @: : I think the 2 biggest hurdles are standardization (esp for “shared access to data”) and HIPPA compliance #socpharm

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@: HIPAA flag gets thrown up all the time. We (patients) need to #arabspring this b*tch. #socpharm

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@mattsnod: Agree. Where there are patients, physicians, and Internet we need ePBoR. #socpharm

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@: And those many patients who are still “analog” #socpharm

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@: This confuses me as to why shared access to data is so difficult. Especially when it belongs to the patient. #socpharm

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@: Who the f is in that category? #socpharm

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I think some MDs will roll their eyes re: PBoR because they fear patients will tell them how to be doctors. #socpharm

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@: Ha. Love the use of #ArabSpring :) #socpharm

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@: why we’re wanting to call it DIGITAL patients bill of rights. for now. #socpharm

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@: Agreed. Empowered patients = healthier patients. #socpharm

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@: So you bring up the point that the average patient is not “engaged, empowered, and enabled” which is true. #socpharm

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@: Getting institutions to buy in requires articulating what is in it for them, no? #socpharm

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@: kneejerk response from the ego-driven. I only work w/docs who will talk to me as a key player. #socpharm

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True! RT @: : I think some MDs will roll their eyes re: PBoR because they fear patients will tell them how to be doctors. #socpharm

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@: It’s the means (technologically) by which it’s shared. Will need to be HIPPA-compliant and … #socpharm

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RT @: : @: Agreed. Empowered patients = healthier patients. AMEN TO THAT #socpharm

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@: Part of empowerment = patients MUST learn how to critical discern healthcare info. i.e. not printouts re: latest “cures” #socpharm

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@: … accepted as a standard by hospitals, payers, insurance co’s, HCPs, etc. #socpharm

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@janechin: They already fear that. That’s where “cyberchondriac” comes from… #socpharm

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@: Though I believe MDs need to focus more on becoming a team & realizing they are 1 stakeholder of many & not the only one #socpharm

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RT @:: @: They already fear that. Thats where “cyberchondriac” comes from [#epatients can lead there!] #socpharm

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There is a true opportunity for us to help patients learn how to tell evidence from quackery. Hope = good. False Hope = Waste of $ #socpharm

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@TiffanyAndLupus: I’m interested in access to data. We have so much trouble getting our own data from those who measure it. #socpharm

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@: This is true: some MDs still have to wake up to a different caring environment. Care is no longer dictated. #socpharm

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RT @: : @: I believe MDs need to focus more on becoming a team & realizing they are 1 stakeholder of many #socpharm

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@: True. There are some breakthroughs with patient data that are allowing us to have out own data. MDs are resisting alot. #socpharm

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Has everyone heard of HL7? that is the lingua franca for health data in XML #socpharm

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@: Good point. Doctors & hospitals will need to see the benefit to them #socpharm

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@: Example: I have to pay a $35 “photocopy” fee to access med records that should belong to me. WTF. #socpharm

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@: access is critical. #socpharm

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@: True, especially when, for instance, #diabetes patients get avg. 16 minutes with their docs each year. #socpharm

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: @: @: This is the part that I always come back to. Along with people fully owning their health & conditions. #socpharm

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@: HL7 and the approaching ICD-10. Oy! #socpharm

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@janechin: Yes! There is systemic resistance even when there are laws in place. I’ve also heard about time delays. #socpharm

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This matter of complacency is a human challenge that becomes a patient one when complacent ppl becomes sick. #socpharm

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@: WTF indeed. Bullsh*t. #socpharm

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@: Well said! If MDs were less “cyberchondriacs” they could utilize SM to filter what pts are doing; exposing quakery. #socpharm

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@: The break-thru will prob come down-up. Some genius mobile developer will make it! #socpharm

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@: That is ridiculous re: 16min with docs/year! (not so ridiculous for the MD who sees 50 patients A DAY though) #socpharm

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@: @: it’s a war of attrition. If they Heisman us long enough, they hope we’ll go away. #socpharm

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I hope that greater health acctability & outcomes focus will engender more team orientation in health maint. with patient as hub. #socpharm

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RT @: : @: This is true: some MDs still have to wake up to a different caring environment. Care is no longer dictated. #socpharm

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RT @: : @: Example: I have to pay a $35 “photocopy” fee to access med records that should belong to me. WTF. #socpharm

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RT @: : @: If MDs were less “cyberchondriacs” they could use SM to filter what pts are doing, expose quakery. #socpharm

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@: It does belong to them. How many of us could really track our own health records, going back years? #socpharm

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HCPs have issues sharing their health info between each other when needed so if patients have it they can pass it along #socpharm

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@: What does it mean to Heisman? (I only work with a football player, I don’t understood football). #socpharm

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@janechin: Interesting angle. Some resistance probably comes from low per-visit payments with no focus on quality outcomes.#socpharm

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@: Was looking for actual figure I heard at ADA, but it was something ridiculous like that. #socpharm

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RT @: : I hope greater health acctability & outcomes focus will drive more team orientation in health w/patient as hub. #socpharm

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@: 16 minutes isn’t even enough to check the status of a diabetic foot… #socpharm

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Anyone know of the 2012 new group pay policies that are about to roll out where MDs will get paid based on patient exp? #socpharm

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@: look at the Heisman Trophy. Imagine your head by the dude’s hand. Holding you away. Far, far away. #socpharm

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Careful that we refer to HCPs as monolith. Like all change, HCPs are progressively coming around. How to accelerate shift is opp. #socpharm

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@: @: 16 minutes is an eon in some primary care practices. #socpharm

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The hospital never passed along their test results to my PCP, if I had them I would have provided them directly to that PCP #socpharm

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Back to Digital Pt Bill of Rights. What’s the next step? #socpharm

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So, we’ve established that the system wants to hoard data. Does ePBoR have to go political to get traction? #socpharm

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@: I’m not sure I agree basing pay on patient experience. Sometimes patients are unhappy w/the truth = “bad” pt exp? #socpharm

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@: Sorry, I meant own as in mentally and emotionally. :) #socpharm

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I believe in order for all other stakeholders to comply with the ePBoR; they will have to see how it would benefit them. #socpharm

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@: @: http://t.co/pf9otJ1O #socpharm

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@: Yes, very true, too. #socpharm

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Patient/Physician Engagement RT @: : Back to Digital Pt Bill of Rights. Whats the next step? #socpharm

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@: I know. our old pediatrician didn’t spend 16mins a year with my kid. don’t get me foaming at the mouth. #socpharm

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@: thanks, Matt ;) #socpharm

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#socpharm i know in clinical trials it is often tough to get a hold of our study participants’ med hx even if THEY request it

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Here is question. How many here use an ePHR for themselves and keep it up to date and offer to share it with their MD? #socpharm

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@: @: Being Heisman looks painful. #socpharm

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@: May need a critical mass of need rather than regulation from above. #socpharm

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@: I had to get cancer to get longer than 5 mins of facetime w/a doc #socpharm

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@: From what I hear MDs won’t have a choice. It will be in the MDs best interest to improve their patient relationships. #socpharm

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RT @: : I agree completely. RT @: : A patient bill of rights should be adapted/adopted beyond the U.S., too. #socpharm

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@cadelarge: the PHR needs to be easier than paper. Like my Gmail account that survives house moves, job changes, etc. #socpharm

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@: @ and I repeat: patients (all of us, we’re all PEOPLE) need to #arabspring this b*tch #socpharm

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@: My concern is, without safeguards, docs get pressured to please patients to get good survey review. #socpharm

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@ We need HCP buy in for patient bill of rights–that an empowered pt will be more invested in their own outcomes #socpharm

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RT @:: @: PHR needs to be easier than paper. Like my Gmail account that survives house moves, job changes. YES! #socpharm

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@: I’m not sure that “the system” does want to hoard data. Just think it’s difficult for them to share it. #socpharm

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@: Are PCs easier than paper? :-) Didn’t stop adoption though as it offered greater value. #socpharm

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: #socpharm we can use evernote to keep our own ephr’s but it still requires some effort

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@: @: that makes me feel sick to hear #socpharm

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@: : @: without safeguards, docs get pressured to please patients to get good survey review. [huge risk] #socpharm

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@cadelarge: Not sure PCs are easier than paper, but cloud systems are. If you can take the fact that your data is in others’ hands #socpharm

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@: @: great point #socpharm

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@: This is a major issue. Multiple areas where patient data is stored & most of it isn’t electronic! #socpharm

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If you want facetime with an HCP, get a oriental MD or chiropractor. :-) #socpharm

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@: I am starting to place a lot more trust in cloud computing. Moreso than my hard drive. #socpharm

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RT @: : @: I am starting to place a lot more trust in cloud computing. Moreso than my hard drive. #socpharm AGREE!

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@: Haha! Well I came from a board earlier today that created a phone app which records your MD visit! Great stuff #socpharm

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@: Everyone can picture in their heads the rows of files behind the receptionist in the doc office?? That’s 1 HD. #socpharm

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@: wish I could say that I maintain a mhr for myself and my kids! #socpharm

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@ Agree. Most hospitals are nonprofits & since there are no federal ERH standards it’s been tough for them. #socpharm

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@: hard truth. #socpharm

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@: Gotta link, or app still in development? #socpharm

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@: PCs arent easier than paper, is my point. Using ePHRs? I agree w cloud trust but there is a dark side we discount. #socpharm

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@: @: What about concern over hacking and gaining access to someone’s most sensitive info? #socpharm

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@ Amen!! #socpharm

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@: amen to that! Cloud still has some security concerns, but it’s hardening as it matures #socpharm

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: @: or for facetime get a doc with an iphone! Lol #socpharm

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@: Very true, though I’ve been seeing more MDs actually gearing towards improving their care to increase pat experience #socpharm

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@: I just don’t think there’s a killer app. It has to be app + empowered & educated patients + HCP buy-in #socpharm

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@: tell us all about that!! I WANT IT. #socpharm

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@: : tru dat! #socpharm

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@: An EU colleague of mine was amazed that US MDs have so many paper files. Suggests govt can be positive change agent. #socpharm

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So, been talking about data a lot. I have the ePBoR in front of me bit.ly/pESYCn lots more about the stance of the HCP and patient #socpharm

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@: ~> @ (The phone app that records MD visits) #socpharm #hcsm

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@: Security breaches are always a result of the weakest link. Much easier to search thru ur trash :) #socpharm

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RT @: : @: Everyone can picture in their heads the rows of files behind the receptionist in the doc office?? That’s 1 HD. #socpharm

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@: Only issue with Google is that they store data; so then there is a privacy issue that doesn’t comply with HIPPA #socpharm

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: RT @: #socpharm i know in clinical trials it is often tough to get a hold of our study participants’ med hx even if THEY request it

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@: Agreed. Incentives that change human behavior is the killingest killer app of all. :-) #socpharm

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@TiffanyAndLupus: With consent you can store data as long as you ensure owner has control. #socpharm

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@ there IS a solution on the horizon. I know the company doing it. DM me later for deets. #socpharm

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@: Yes govt is the only one with the power to enable healthcare change, w/ Medicare/Medicaid they r BIGGEST payor = power. #socpharm

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@: Very true. I feel another huge hurdle is the Physician/Patient relationship. There isn’t enough communication. #socpharm

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@: If you speak of Google Health. It is dead, no? MS Health Vault is still there though. #socpharm

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Should there be a non-profit course for new patients to learn how to extract best out of healthcare system? #socpharm

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@: Google health is definitely dead. Learned that at #ePatCon last month. #socpharm

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@: and you’d think better health is enough incentive. And it is, if u live in a vacuum #socpharm

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@: @: Really no time for communication if doc is in a rush & already behind. #socpharm

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YES! RT @:: Should there be a non-profit course for new patients to learn how to extract best out of healthcare system? #socpharm

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@: @: patient empowerment HAS to include responsibility/ownership. Otherwise we’re just acting like divas. #socpharm

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Not true! RT @: : @: @: Really no time for communication if doc is in a rush & already behind. #socpharm

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@: what does this mean for patient If data being stored is”controlled” by someone else? #socpharm

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@: Interesting idea. Lots of hospitals adding concierge services to help pts (esp cancer pts) navigate complex system. #socpharm

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YES! RT @:: Should there be a non-profit course for new patients to learn how to extract best out of healthcare system? #socpharm

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@: : Let me kno when u find that MD as I want 2 work w them. I encourage my MD in this way & she is coming around. #socpharm

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RT @:: Should there be non-profit course for new patients to learn to extract best out of healthcare system? HELLZ yea #socpharm

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@: @: and they’re leaning far away from health apps, putting that on, well, us. Happy to take it tho #socpharm

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@: Personally I get upset to hear MDs don’t have enough time. We all pay for their time. There is no excuse! #socpharm

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@ The doctors aren’t paid by the insurance companies to talk to us. #socpharm

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@: If better health were an incentive enough, people would just take care of themselves which we know doesnt happen enuf. #socpharm

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@EllenHoenig: data handlers *must* give control to users… like Google does with download and full exp. of (evil) privacy settings #socpharm

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@: Patients were never “taught” how to BE patients. Many don’t know what they should be doing. #socpharm

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@: Doesn’t seem to be an app for @ #socpharm

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RT @: : YES! RT @: Should there be a non-profit course for new patients to learn how to extract best out of healthcare system? #socpharm

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Elderly and indigent paitents have the greatest need, least access #socpharm

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@: @: is that the health insurance patient advocate trend? #socpharm

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@: Probably but that course is already at B&N and on the internet. but who wants to take it before a crisis hits? #socpharm

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RE: payments and time… this will only get worse as population ages. #socpharm

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@: I disagree. If I pay for my visit to the MD; they had better make time for all my questions. Else they’re fired. #socpharm

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@: that is SO true. #socpharm

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@: @: like drivers license, u have to take the course. Or else u r not allowed to get sick :) #socpharm

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@: I don’t think there is one good strategy for getting best healthcare, depends on your own doc and insurance #socpharm

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: RT @: Elderly and indigent paitents have the greatest need, least access #socpharm

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@: http://t.co/9pLNmj6e There is a free app available for download via iphone, android, etc. #socpharm

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@CMI_Media: ha ha … love it. I’d opt out of the test then.#socpharm

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@: Being patient is “on the job” training like most roles in life, no? :-) #socpharm

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@: @ true true a million times true #socpharm

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It’s up to us to educate ourselves, and to help educate others. That’s what I see as my #epatient mission. #socpharm

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@cadelarge: @: being a caregiver is also on-th-job training. no one tells you how to work the system to get results. #socpharm

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@: I think the best way to truly get the most of HC is to be engaged. None of this “passive” behavior we’ve been stuck in. #socpharm

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Very true! RT @: : @: Being patient is “on the job” training like most roles in life, no? :-) #socpharm

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RT @:: @: @: being a caregiver is also on-th-job training. no one tells you how to work the system to get results. #socpharm

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Attitude of collaboration & overall respect is pt 2 Digital Pt Bill of Rights. I think everyone would agree to that. #socpharm

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RT @: : @: I don’t think there is one good strategy for getting best healthcare, depends on your own doc and insurance #socpharm

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@: Thx. Found it on iTunes & thx to iOS5, it’s DL’ing to my iPhone automatically :) #socpharm

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@: True. Most caregivers & epatients become like so because of their circumstance & not b/c they were taught #socpharm

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@: Actually, MDs are being paid by insurance companies, we patients only pay copay. So they listen to HMO/PPOs. #socpharm

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@EileenOBrien: Yes, and stakeholder/transparency/voice are all “stance” issues #socpharm

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RT @: : @: I disagree. If I pay for my visit to the MD; they had better make time for all my questions. Else they’re fired. #socpharm

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Hello! This is Jacqueline from Ubiqi Health joining #socpharm very late!

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@: well yeah. But then you’ve got all the non-preventibles. My all organic diet did nada for me when I got Crohn’s #socpharm

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@TiffanyAndLupus: they’ll make time within reason, but don’t expect them to spend all day with you . . #socpharm

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@: Please let me know your experience with it! I’ve had a great one & would like to compare. :) #socpharm

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@: True but do we have the skill and patience to be collaborative and respectful? Hmmm. #socpharm

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So, back to the course… I think a lot of mentoring already happens on the different SM sites #socpharm

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@: I agree, engagement is important but the exact tact to take with your own HCP will differ based on who they are #socpharm

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@: Are you gluten-free, too? #socpharm

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Coordination of care very poor to nonexistent with Medicaid/Medicare patients. Endless rounds of tests add cost to the hc system #socpharm

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@: Will do. #socpharm

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@CMI_Media: Hi All, Andrew Lopez, Registered Nurse from #newjersey passing by :) #socpharm

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@: @ so true. Makes you grow up fast too #socpharm

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e-patient Dave talks about ACOR and what that group did for him… #socpharm

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@: Regardless of who pays my MD the point is they are paid to CARE for the patient. Theres no excuse for bad beside manner #socpharm

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: With my new doc spent ten mins advising her on daycare – shes a keeper RT @: The doctors aren’t paid to talk to us. #socpharm

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More outreach, patient advocates needed for sure RT @: : Elderly and indigent paitents have the greatest need, least access #socpharm

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@: I hear you. I agree. I see Healthcare as human-care and humane-care. #socpharm

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& advocacy. RT @:: So, back to the course… I think a lot of mentoring already happens on the different SM sites #socpharm

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RT @:: More outreach, patient advocates needed for sure RT @: : Elderly and indigent paitents have the greatest need, least access #socpharm

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RT @: : @: Patients were never “taught” how to BE patients. Many don’t know what they should be doing. #socpharm

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Exactly! RT @: : @: I hear you. I agree. I see Healthcare as human-care and humane-care. #socpharm

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@ But w/surgeon I’ll take someone who can perform in OR over a good personality any day. It’s all subjective #socpharm

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on topic for #socpharm RT @: The interests of doctors and patients sometimes conflict http://t.co/ULEta1sy

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@: nope, now I just eat what my toddler rejects #socpharm

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@TiffanyAndLupus: That is slowly changing with health advocate groups, websites for quick reference allow research #socpharm

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@: You have heard that we have a sickcare, not a healthcare, system. #socpharm

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RT @: : I think a lot of mentoring already happens on the different SM sites [it does, mos def] #socpharm

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RT @: : @: If better health were an incentive enough, people would just take care of themselves which we know doesnt happen enuf. #socpharm

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@: Welcome Andrew! Great to see your familiar face in here :) #socpharm

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@: Right, the respect and collaboration should go both ways. #socpharm

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After running the gamut of doctors who couldn’t figure out what was wrong, turns out what works for me isn’t even covered by ins. #socpharm

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RT @:: @: Thats slowly changing with health advocate groups, websites for quick reference allow research #socpharm

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Sad but true for the most part RT @: : @: You have heard that we have a sickcare, not a healthcare, system. #socpharm

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@EileenOBrien: And notice that those who have more tech skills (surgeon / anesthesiologist) are rewarded more than GPs #socpharm

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too many think of healthcare as something that happens “over there” until it happens TO THEM: cancer/ms/lupus/ra/whatever #socpharm

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@cadelarge: 1/3 americans actually care and are proactive, 1/3 go with flow, 1/3 don’t care one way or another about their health #socpharm

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@: True, but what is the point if there is no care post-surgery? ?’s aren’t answered you end up back in hospital #socpharm

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@: My bro-in-law was misdiagnosed for year with Crohn’s but actually had celiac #socpharm

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@: surgeon who can’t explain effectively may not talk you into best surgery, so need balance of skill and personality #socpharm

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@: what did work? #socpharm

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: #socpharm should be about connecting communities – we have too many competing agendas lots of silos not enough cross-communication / sharing

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@MightyCasey: True. there is a reason that fit people survive cancer more often (i think) #socpharm

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No, nor are nurses, HCPs, RT @: : @ The doctors aren’t paid by the insurance companies to talk to us. #socpharm

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@ That’s where the RNs come in! They are all about the education. #socpharm

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RT @: : @: Personally I get upset to hear MDs don’t have enough time. We all pay for their time. There is no excuse! #socpharm

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#socpharm should = connecting communities – we have too many competing agendas / silos not enough x-communication / sharing @:

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@: @ I disagree somewhat. Good personality & communication so often is diff btwn life n death w HCPs #socpharm

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@: Yes, this is true, but aren’t we getting more into preventive care? #socpharm

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Part of the respect to MDs is to respect their time and present symptoms briefly and accurately #socpharm

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@: @: that’s absolutely true: US is sick-care not well-keeping, which is why system is sick. #socpharm

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@: Wait! I don’t think that tweet was mine though it is a great point. #socpharm

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@TiffanyAndLupus: #doctors have roughly 15 minutes per patient reimbursement from managed care, insurance companies #socpharm

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@: I have heard of that! There’s a new site he may like, DM me for an invite it’s in beta #socpharm

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RT @: : @: Interesting idea. Lots of hospitals adding concierge services to help pts (esp cancer pts) navigate complex system. #socpharm

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@: I completely agree! Patients NEED the communication to followup & continue care outside of MD office #socpharm

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it’s even more difficult to be a savvy patient when using free clinics for care when lacking health insurance #socpharm

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@: Aha! But it’s not so easy for most people to present symptoms briefly and accurately. Used any helpful tools? #socpharm

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@EileenOBrien: Navigators are a welcome addition, need to see a lot more of them to guide #patients through system #socpharm

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There should be a cadence where MD discusses, both go and research, then come back and discuss again. #socpharm

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@: True and this is reflective of a society that worships tech. We do this in many other occupational areas. #socpharm

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RT @:: @: data handlers *must* give control to users… like Google does with download and full exp. of (evil) privacy settings #socpharm

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@: amen to that! one of the reasons these chats are like drinking from a firehose. We’re all trying to learn/educate! #socpharm

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RT @:: There should be a cadence where MD discusses, both go and research, then come back and discuss again. YES! #socpharm

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@bradeinarsen: HIPAA gives some portability, but we’re a long way from having full control of our #health records #socpharm

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@jacthong: Personal experience. Ask me offline about my 50-page treatise on my daughter :-) Shorter gets better results. #socpharm

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SO TRUE! They’re more likely to comply than MDs RT @: That’s where the RNs come in! They are all about the education. #socpharm

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@: plus think about this, if ur doctor can’t communicate w u, is s/he comm with other health team members? Prob not #socpharm

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Thanks, all. Have to go put kids to bed. #socpharm

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@: @ good points re communicating with surgeon. But still want someone with the good hands! #socpharm

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promoting innovation, #socpharm, and moving the conversation forward … thanks for the presentation today @ @

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@: Yes, but preventive care is still a vanguard topic and not a norm but progress is encouraging. #socpharm

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@: @ I trust NPs and RNs more than I do most MDs – I get the straight scoop, no attitude. #socpharm

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@: It is my experience in the HC system that drove me to where I am today. #ePatient by day; annoying my MD dailly :) #socpharm

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RT @: : Would love to ask 2 questions: what p***es you off about pharma? what would you personally change for … change? #socpharm

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@ Very true, sorry I’m not directing the chat very well tonight. Just interested in seeing the flow… #socpharm

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@cadelarge: And it will always be a combination. Going to the gym 3 days a week doesn’t change your changes of CA, just your … #socpharm

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RT @: : @: plus think about this, if ur doctor can’t communicate w u, is s/he comm with other health team members? Prob not #socpharm

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… for therapy. #socpharm

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RT @: : @: @: like drivers license, u have to take the course. Or else u r not allowed to get sick :) #socpharm

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@: I do understand why some MDs don’t engage. Afraid of intimacy & the burnout, but it’s necessary. Change is needed. #socpharm

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RT @: : RT @: : A patient bill of rights should be adapted/adopted beyond the U.S., too. WERD! #socpharm

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That was supposed to be TOLERANCE for therapy. #socpharm

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@: @: @ my surgeon talked to me, looked me in the eyes, was human … and had great hands. a WOMAN. #socpharm

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RT @: : RT @: : @: Agreed. Empowered patients = healthier patients. AMEN TO THAT #socpharm

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@: Good night! & do let me know how @ works for you :) #socpharm

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@: got an answer (or 2) for me? :D #socpharm

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+1 RT @: : RT @: : RT @: : @: Agreed. Empowered patients = healthier patients. AMEN TO THAT #socpharm

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@: True which is why quality, vs quantity, of life is better as in the long run, we are all aging, sick & dead. :-) #socpharm

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@: if u ever read Lisa Sanders you can see the need for it #socpharm

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@: – need to check out the limitations of that survey… some strengths, MANY weaknesses, including sampling bias. #socpharm

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@: Will do. Thanks! #socpharm

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@: It’s going great though. A free flow of progressive thoughts. You’re doing great! #socpharm

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@: If we don’t make it to see preventive healthcare as standard, maybe our children and grandchildren will. #socpharm

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@ Gluten-free diet, exercise, massage. Hard to get ins. cos to pay for chiros & massage, cheaper for me to pay OOP. #socpharm

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Alright, gotta to mark paper. Good chatting all. Be well and blessed. #socpharm

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RT @: : Anyone know of the 2012 new group pay policies that are about to roll out where MDs will get paid based on patient exp? #socpharm

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@: yes! And I know we r talking about the minor % of docs too. #socpharm

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RT @: : I believe in order for all other stakeholders to comply with the ePBoR; they will have to see how it would benefit them. #socpharm

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@: Take care & thanks for joining in. #socpharm

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I wish some pharma companies could be more open to learning on the commercial side. They r on R&D side by its very nature. #socpharm

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I’m in! “@TiffanyAndLupus: : Patient/Physician Engagement RT @: : Back to Digital Pt Bill of Rights. Whats the next step? #socpharm

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@: so it WAS a food-related thing. Food is at the root of so many issues. Farm beats pharm almost every time. #socpharm

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Exactly! Some are improving though. RT @: : @: yes! And I know we r talking about the minor % of docs too. #socpharm

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I would love Pharma 2be able to speak in real English & not have 2use so much regulatory language that patients can’t understand! #socpharm

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@: I long to see a system wherein preventive & holistic practices are the norm. #socpharm

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@EileenOBrien: I’m biased (work for pharma) but it kills me when payers try to cut pricing for drugs that cost $billions in R&D #socpharm

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Thanks for all the empowered patients taking part in #socpharm tonight! Great thoughts shared.Hope to see you next

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RT @: I would love Pharma 2be able to speak in real English & not have 2use so much regulatory language that patients can’t understand! #socpharm

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@: I agree. It’s going to be a challenge to get Pharma to view any side besides ROI regarding healthcare though. #socpharm

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Wow that was fun #socpharm

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@: dirty underbelly: the me-too and disease-mongering in R&D. #socpharm

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@ Food and stress. If we could tackle those two, there would be a sea change in health. #socpharm

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@EllenHoenig: But that’s not their choice. They get slammed if they speak plainly (in some cases) #socpharm

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Anyone have final thoughts for tonights chat? Key points they’d like to share? #socpharm

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@ sing it! Of course, that’s true across the healthcare spectrum. Confuse ‘em w/Latin + scientific terms. #socpharm

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Definitely! RT @: : @: : Food is at the root of so many issues. Farm beats pharm almost every time. #socpharm

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Final thoughts: We need POLICY to promote STANCE inside of appropriate TECH. #socpharm

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Thanks a really thought-provoking chat everyone! #socpharm

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Regarding Pharma; what I want most from them is TRANSPARENCY! Don’t sell a dream drug that doesn’t exist! #socpharm

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@: what?? it’s been an hour already??? tempus fugit, indeed ;) #socpharm

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AMEN! RT @: : @ Food and stress. If we could tackle those two, there would be a sea change in health. #socpharm

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@: yes Pharma by nature is more often focussed on the science than on the human element #socpharm

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@: @: : fixing how we eat and our relationship with food can solve a lot of issues, speaking of prevention. #socpharm

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@: I know. These health driven tweet chats get my blood pumping & then it flys by and finishes before I’m ready :) #socpharm

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Wow, great chat! Drinking from the firehose indeed!!! Thanks all and @: #socpharm

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@: It’s going to be difficult to get pharma & physicians, and HI comp on board with that. There’s no ROI for them. #socpharm

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@: not sure I agree. FDA continuously asks 4communications that r customer appropriate, but balanced benefit vs risk. #socpharm

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Thanks everybody! Glad I joined, even if I was really late. Enjoy the rest of your evenings. #socpharm

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RT @: I would love Pharma 2be able to speak in real English & not have 2use so much regulatory language that patients can’t understand! #socpharm

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@: If these tweetchats were lunar I’d for sure show up on the wrong night every time #socpharm

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RT @: : Thanks for all the empowered patients taking part in #socpharm tonight! Great thoughts shared.Hope to see you next time

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@ I like the idea of lunar, but the #socpharm tweetchat is every Wednesday at 8 pm EST.

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You are so right @: re: even more difficult to be a savvy patient when using free clinics for lack of insurance #socpharm

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@: Thank you for having us! Very glad to have continued the conversation on the epatient Bill of Rights #socpharm

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Lotsa familiar faces tonight :) Just browsed #socpharm a bit :) #hpm

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@EllenHoenig: Fair statement. They do say that. But the safety info has to be exactly right, and it makes it technical. Diff topic. #socpharm

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For those on #socpharm that are interested, a similar patient empowerment convo going on at #hcsma about our neighbors to the North

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@ Which is the disappointing piece (understatement). Overall health is the ROI. But I’m preaching to the choir. #socpharm

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@EileenOBrien: Thanks for organizing. Have meant to participate before, a lot of value here. #socpharm

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@: @: That issue 4 me I must say is good my Pharma helps a lot what I did is got 2 know them that helps 2 #socpharm

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Thanks @: and everyone else for lively tweet chat tonight! #socpharm

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications.

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    20 October 2011 at 11:10pm
    Transcript from last night's ...
  • Eileen O'Brien
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