A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

Rare Disease Patients Are the Power Users of Social Media

Posted by | 4:21pm on Monday, November 21, 2011

These patients naturally turn to social media to find information and each other 

PharmaPhorum asked Siren Interactive to write a series of blog posts about the world of rare diseases. In the six-part series, titled “Rare is different,” we’re showing how working within rare diseases is unlike other pharma markets, particularly in the knowledge and influence wielded by patients and caregivers.

I wrote the fourth post, “Patients and caregivers are undisputed ‘power users’ of social media.” When a disease is rare, finding information about diagnosis, treatment and physicians is more challenging than for a more common disease. These patients naturally turn to social media to find information and each other. These online connections can be extremely powerful, not only for emotional support, but for treatment information.

Read my post to learn more, including stories from rare disease caregivers who have experienced this firsthand.

(Image courtesy of  WebTreatsEtc on Flickr).

About Eileen O'Brien

Eileen has more than 16 years of digital healthcare marketing experience. She is an opinion leader on social media and biopharma, and has been invited to speak at industry conferences and quoted in publications.

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