A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

How Pharma Can Talk With Patients

Posted by | 3:59pm on Thursday, November 15, 2012

I was pleased to lead a panel discussion on this topic at the Centric Ultra Orphan Conference in St. Louis in September. We discussed the new model for pharma that puts a greater focus on patient advocacy and identifying patient expectations. The panel of industry thought leaders included:

  • Alan Gilstrap, Director, Global Advocacy Relations, Cardiovascular, Genzyme Corporation
  • Barbara Wuebbels, Associate Director for the Global Patient Advocacy Program, BioMarin Pharmaceutical Inc.
  • Melissa Hogan, rare disorder caregiver/advocate, writer, speaker, Founder of SavingCase
  • Ellen Coleman, healthcare constituency relations expert, Senior Vice President of Mark Krueger & Associates, Inc.

See highlights of the discussion in this video. This subject is also addressed in Eileen O’Brien’s pharmaphorum article, “How can pharmaceutical companies engage with patients?”

About Wendy White

Since founding Siren Interactive in 1999, Wendy has been recognized as a thought leader at the intersection of niche pharma brands, patient empowerment and online marketing. Her vision for how the internet can facilitate interactions and provide crucial information that patients, caregivers and their healthcare providers previously struggled to find has propelled Siren to the forefront of relationship marketing for rare disorder therapies.

View other posts from Wendy

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