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Tweetchat Archive

#SocPharm Tweetchat Transcript 10/3/2013

Posted by | 11:53pm on Wednesday, October 3, 2012 | No Comments

EileenOBrien: Welcome to the #socpharm chat with @JoPeKim from Shire as moderator. Please say hi!

EileenOBrien: Please note that all tweets will be considered your personal views and not reflective of your employer or clients. #SocPharm

JoPeKim: hi everyone! welcome to the #socpharm tweet chat

crshorizon: Hi All – Great to be here and looking forward to the conversation. Chuck #socpharm

friedah03: Hi all, very excited to join #socpharm chat with @JoPeKim

JoPeKim: Let’s start by talking about research and how patient leaders like @fingohead @sixuntilme and @natasha_tracy might play a role #socpharm

friedah03: @JoPeKim, @EileenOBrien What topics are we looking forward to on tonite’s #socpharm chat? # #clinicaltrials #hcsm #epharma

@JoPeKim: Let’s start by talking abt clinical research & how pt leaders like @fingohead @sixuntilme @natasha_tracy might play role #SocPharm

EileenOBrien: Is anyone else having delays and issues with tweets not showing up in tweet stream? #SocPharm

JoPeKim: yes, it’s slow tonight. maybe because of debates? #socpharm

EileenOBrien: With increase in social media patient leaders are taking big role in #clinicaltrial & research. #SocPharm

EileenOBrien: I bet u r right! RT @JoPeKim: yes, it’s slow tonight. maybe because of debates? #socpharm

vivekaliraman: Clinical Trials or Clinical/Medical “Research”? MT @JoPeKim: how patient leaders might play a role #socpharm”

EileenOBrien: In #raredisease patient leaders are essential through entire process – from research through commercialization. #SocPharm

JoPeKim: allowing patient leaders to curate and comment on research opportunities in a formal way could be invaluable #socpharm

crshorizon: @JoPeKim Info/education from KOL/fellow patient especially valuable with uncertainty of a new therapy #socpharm

EileenOBrien: @JoPeKim interesting idea, how could something like that work? #SocPharm

vivekaliraman: This can get political MT @JoPeKim: allowing patient leaders to curate & comment on research opportunities could be invaluable #socpharm”

JoPeKim: @EileenOBrien Patient leaders could perform a formal review of a protocol just as an ethics committee does #socpharm

friedah03: @JoPeKim That sounds so sensible. What are the barriers you foresee? #socpharm

vivekaliraman: How might patient leaders know about say JAK3 inhibitor role in Rheumatoid Arthritis? @JoPeKim @EileenOBrien perform formal rev #socpharm

friedah03: @JoPeKim We are seeing a lot of patient leaders in #clinicaltrials and research for #raredisease #socpharm

friedah03: A good example is @katherinekleon who kickstarted a study with Mayo Clinic for her #raredisease SCAD http://t.co/8ulMc0op #socpharm

EileenOBrien: @JoPeKim who would decide which pt leaders would be qualified to do this? And per @vivekaliraman: how to keep it like Switzerland? #SocPharm

DiabetesSocMed: RT @RotoTok: Program helps get diabetes under control | Richmond Times-Dispatch – http://t.co/T24f08wL #diabetes #dblog #socpharm #dsma

EileenOBrien: #SocPharm RT @JoPeKim don’t think they’d need to have sophisticated knowledge abt MOAs but should understand what trial means to pts

@JoPeKim: @friedah03: we could start by requiring all trials posted to patient communities to undergo this review

JoPeKim: @EileenOBrien @vivekaliraman: Maybe I am being naive, but I think all patient leaders are “qualified” – its why they are leaders #socpharm

PracticalWisdom: Good Evening my Name is Lisa and I’m a member of #THewalkinggallery & Society for Participatory Medicine. #socpharm

vivekaliraman: Patient groups most suitable to facilitate clinical trial recruitment @friedah03: @katherinekleon who kickstarted a study #socpharm

JoPeKim: @vivekaliraman: don’t think they would need to have deep knowledge about MOAs, but should understand what a trial means to pts. #socpharm

EileenOBrien: @PracticalWisdom: welcome! Thanks for joining #socpharm. We’re talking pr leaders curating clinical trial info

friedah03: Totally agree! MT @JoPeKim: Maybe I am being naive, but I think all patient leaders are “qualified” – its why they are leaders #socpharm

JoPeKim: patients need to be able to talk to a real person to vet trial oppty. patient leaders are the natural choice #socpharm

PracticalWisdom: Thx Eileen. Just got back from #MEDX. Dr. @larrychu provided us with an amazing Conference w/Emphasis Patients. @EileenOBrien: #socpharm

vivekaliraman: Without understanding MOA of a compound hard for anyone to provide useful clinical trial design info @EileenOBrien #SocPharm @JoPeKim

EileenOBrien: @PracticalWisdom: I work in #raredisease space so we are all about the patients/caregivers! And these r some amazing pts. #SocPharm

JoPeKim: @vivekaliraman: @EileenOBrien to be clear, not suggesting patient leaders contribute to study design #socpharm

PracticalWisdom: Other #epatients in your Chat tonight. I”m seeing words like them, they. #S4PM #thewalkinggallery #MEDX G8 source 4 PT’s #socpharm

JoPeKim: shall we move onto EHRs? Loved the video posted by @PracticalWisdom #socpharm

JoPeKim: while there is obvious value to accessing one’s own #EHR, there is a big missed oppty upstream #socpharm

EileenOBrien: @JoPeKim @PracticalWisdom: do you have a link of the video to share? #SocPharm

JoPeKim: Firms like @explorys and @archimedesmodel can use #EHR to help patients peek into their future #socpharm

JoPeKim: @EileenOBrien @PracticalWisdom http://t.co/mqBSUcQx #socpharm

crshorizon: Interesting stats show docs less positive about EHR compared to last year. http://t.co/XAdrPces #socpharm

EileenOBrien: @JoPeKim I bet this helps to change behavior #SocPharm

PracticalWisdom: Thx (EHRs) Can Save Lives:http://t.co/5CVUcrnv MT @EileenOBrien: @JoPeKim @PracticalWisdom: ink of the video. #socpharm

EileenOBrien: @PracticalWisdom: thanks, I’m a big fan of @ReginaHolliday #SocPharm

JoPeKim: when my son was inutero, he had nuchal fold that was “out of range” – marker for Downs. My doc, opened a book (!) to look up risk #socpharm

JoPeKim: …would have been better to access analytics based on millions of EHRs #socpharm

JoPeKim: patients deserve access to #bigdata and #EHR. we consume it all the time when looking up the weather, why not for healthcare #socpharm

EileenOBrien: Speaking of behavior change at Google ThinkHealth there was amazing co using video/animation to show how behavior impacts organs #SocPharm

vivekaliraman: Fully Agreed MT @JoPeKim patients deserve access to #bigdata and #EHR.why not for healthcare #socpharm

EileenOBrien: Time is almost up. Anyone have any closing thoughts? #socpharm

JoPeKim: “I think the biggest innovations of the 21st century will be at the intersection of biology and technology.” Jobs #socpharm

EileenOBrien: Thanks to those who joined in #SocPharm tonight and big thanks to @JoPeKim for moderating. Will post transcript tomorrow.

JoPeKim: thanks for having me! #socpharm

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