Like many mothers dealing with a child’s chronic illness, I have had to become a clinical researcher, develop my own medical opinions and assert myself to demand the standard of care I feel he’s entitled to.
LaTonya Hicks, Office Manager at Siren Interactive, contributes this post:
As a mother you want to protect your children from harm, and you do your best to ensure they grow into healthy, educated, responsible adults. But be that as it may, sometimes life can throw you a curve ball when you least expect it.
My son was diagnosed with Juvenile Myoclonic Epilepsy (JME) at the age of 13. He had his first grand mal seizure on my daughter’s 18th birthday. The doctors did not medicate him at that time because they did not find any abnormal activity in the brain, and said it was a possibility that he might never have another seizure again. After an overnight stay in the hospital and a series of tests, he was sent home the next day, and for the next 3 months I was on guard.
It’s a feeling of sheer terror to watch your child go through something that they are not even aware is happening to them. I thought I had lost my child. When the seizure stopped he stopped breathing. The feeling I had at that moment will never leave me. It’s one that I never want to experience again. To this day I am unable to sleep through the night. I resolved to educate myself about this condition.