The goal of 10,000 clicks was exceeded and Lundbeck donated the maximum amount of $10,000 to NORD
Waking up at 4:00 AM to go stand outside in the cold isn’t usually my idea of fun, but for Lundbeck’s Rare Disease Day event on Monday morning, it was most certainly worth it!
Nina Prybula, Tanika Craig, and I represented Siren and joined 25 other rare disease advocates outside the NBC 5 news studio to promote awareness of the Raise Your Hand with Lundbeck to Fight Rare Diseases campaign. As you can see in the video below, we waved our big purple hands as the newscasters announced how viewers could help donate money to the National Organization for Rare Disorders (NORD) by simply clicking on the Raise Your Hand icon on the Rare Disease Day U.S. website. (Please note that the donation period is now closed). For every click, Lundbeck promised to donate $1 to NORD’s general research fund.
The goal of 10,000 clicks was exceeded and Lundbeck donated the maximum amount of $10,000 to NORD. We were not only thrilled about the outcome, but felt honored to have had a chance to meet the other rare disease advocates and patients. Just listening to people’s individual stories and how they have overcome adversity was reason enough to get up before the sunrise that morning. All the participants were so inspiring that it really made you feel good to be able to support such a worthy cause.