A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

Advocating for Treatments to Change Modern Medicine

Posted by | 10:19am on Wednesday, July 27, 2011

Momentum is building for additional funding for research to find effective treatments. 

On Monday more than 4 million readers received the Washington Post supplement focused on rare diseases. In addition to updates on the latest progress in the industry, content included personal stories about a few of the all-too-many children afflicted with a rare disorder who are fighting for their lives.

Momentum is building for additional funding for research to find effective treatments. But currently, less than 10% of the 7,000 rare diseases have an FDA-approved treatment. There’s much to do and it can’t happen fast enough.

This campaign was designed to help raise awareness and advocate for treatment options for the nearly 30 million rare disease patients across the United States. Siren Interactive is pleased to have participated. As an industry professional, it’s gratifying for me to see this type of exposure and collaboration on behalf of rare diseases. And as a mother of a daughter with a rare disease, it’s also very inspirational.

About Wendy White

Since founding Siren Interactive in 1999, Wendy has been recognized as a thought leader at the intersection of niche pharma brands, patient empowerment and online marketing. Her vision for how the internet can facilitate interactions and provide crucial information that patients, caregivers and their healthcare providers previously struggled to find has propelled Siren to the forefront of relationship marketing for rare disorder therapies.

View other posts from Wendy

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    27 July 2011 at 4:07pm
    Advocating for Treatments to Change ...
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