A blog exploring pharmaceutical relationship marketing, emarketing and innovation with a focus on rare disorders.
SirenWired
The convergence of rare disease, digital communications, and pharmaceutical marketing communications

Search Engine Marketing Archive

FindZebra: Rare Disease Search Engine

Posted by | 9:52am on Friday, March 22, 2013 | 3 Comments
zebra

if you’ve ever tried searching Google or Bing for rare disease symptoms, you know that this is not effective 

Physicians are trained to arrive at a medical diagnosis by starting with the potential causes that are most common. The adage is “When you hear hoofbeats, think horses—not zebras.” This is logical and effective if a patient has a common condition, but the diagnosis of an orphan condition requires a different approach. The National Organization for Rare Disorders estimates that it takes an average of 9 years for a rare disease patient to get an accurate diagnosis.

This means that many patients, caregivers and physicians are online searching for answers, using search engines and forums. But, if you’ve ever tried searching Google or Bing for rare disease symptoms, you know that this is not effective. Enter Radu Dragusin from the Technical University of Denmark and a few colleagues who have launched a new search engine dedicated to the diagnosis of rare diseases called FindZebra.com.

Their study published in the International Journal of Medical Informatics shows FindZebra outperforms Google. The research explains that the algorithms of popular search engines (such as Google) favor websites that have a number of other websites linking back to them. These links validate that the information has been found useful to others. But by its very nature, information on rare disorders is typically scarce and has fewer backlinks.
Read More

FDA logo

FDA Letter Mentions Internal Site Search

We recently reviewed this FDA warning letter sent on January 29, 2013 to Medical Doctors Research (MDR), a nutritional supplement…

Tags:

Facebook Graph Search – Not As Scary As It Seems

There has been a lot of buzz regarding the upcoming Facebook Graph Search launch and its effect on healthcare marketing. Some…

Tags:

I love Google photo on Siren Interactive blog, SirenSong

Physician Insights from Google’s ThinkHealth

The other day I attended the annual Google ThinkHealth event to review some of the latest digital trends. Among the…

Tags:

InnovationPharm: What’s New in Search & YouTube

To keep up with what’s new and innovative in technology, as well as the biopharmaceutical industry, we have a learning…

Tags:

New Data on Physicians, Search & YouTube

The Manhattan Research-Google Physician Channel Adoption Study 2012 reinforces what we already know–that physicians use general search engines for clinical…

Tags:

Symptom Search with Dr. Google

In February Google announced a new enhancement to their search results for health symptoms. We have known for a long…

Tags:

Three Google Innovations and Changes Pharma Needs to Know About

Google has been an important part of the health research process for patients and healthcare providers for many years. This…

Tags:

sign saying evolutionevolution

Google Search Reigns Supreme Even for Doctors

Two studies were recently released regarding the online search habits of physicians. The first, Kantar Media’s Sources & Interactions, found…

Tags:

Google Analytics Makes Changes in SEO Keyword Reporting

This week Google announced that it is making a change to how Google Analytics (GA) reports keyword level data. Google…

Tags:

What Pharma Marketers Need to Know About Google Instant

On September 8, Google Instant was launched, showing search results as the user types the query. You don’t have to…

Tags:

prescription sign

What Do Patients Do Right After Diagnosis?

New research shows that patients turn to search engines for health and medication information, and no longer just rely on…

Tags:

What’s Metadata & Why Pharma Should Care

Metadata, which is invisible to anyone viewing a website in a browser, is part of the underlying page code. Search…

Tags: ,

swiss-flag

Google Starts Editing Drug Results

When you search a popular drug on Google the first result is now from the National Institutes of Health (NIH)….

Tags:

Google 2nd to Doctors as Source of Health Info

Dr. Google is still diagnosing Americans. A recent survey found 22% consider Google searches “influential” in seeking health info. While…

Tags: ,

twitter

Social Media and Search

Soyoon Bolton, Content Strategist at Siren Interactive, contributes this post: Recently, I posted an update on my Facebook profile asking…

Tags:

Is Paid Search Over For Pharma Marketers?

Lindsay Millsap, Search Engine Marketing Strategist at Siren Interactive, contributes this post: Last week, the U.S. Food and Drug Administration…

Tags:

2512148775_61fa58b4b3

Why Search Matters More for Rare Disorders

Pamela Todd, Content Strategist at Siren Interactive, contributes this post: Search matters — especially when it comes to healthcare.  The…

Tags:

J&J Going For Niche Markets

In an October 6th Advertising Age article titled “Small Brands Could Be J&J’s Next Big Thing,” the journalist reported that…

Tags:

Wikipedia logo

Play by the Rules, SEO in Wikipedia

Wikipedia is fast becoming one of the top reference resources for many who are searching for information on a particular…

Tags:

Contextual Search Ads

One of the other presenters at the CBI conference I spoke at last week really sparked my interest. Revolutionhealth was…

Tags:

SEM: Technical Matchmaking

SEM through optimization and paid search campaigns for chronic and niche disease states turns out be be a great way…

Tags:

Siren Interactive
  • Siren Interactive
  • Rare Disease Relationship Marketing Experts
  • 626 West Jackson Blvd, Suite 100
  • Chicago, IL 60661
  • 312.204.6700
  • 866.502.6714 (Toll Free)
  • www.sireninteractive.com