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Profiles >> Ciaran Bellwoar Archives

Ways to Engage Patients for Clinical Trials

Posted by | 1:10pm on Thursday, April 19, 2012 | 16 Comments

only 2% of the US population and 4% of physicians ever get involved with clinical research 

Use mobile devices to keep patients motivated. Leverage electronic health records to find eligible participants. Create a robust website dedicated to educate participants. These were some of the innovative tactics discussed at the 3rd Patient Engagement Summit in Philadelphia on March 20-21, 2012.

Joe Kim, Director of Clinical Operations at Shire Pharmaceuticals, was the conference chairperson, and he did a great job of keeping the audience engaged and on track. He is clearly one of the leaders in innovative ways to engage patients and shared his expertise judiciously throughout the two-day event.

The biggest challenge identified by all speakers was finding patients willing to participate in clinical trials.

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Power Panel Discussed Future of Healthcare

“Passion isn’t enough to make a difference,” said Pat Furlong, president of the Parent Project Muscular Dystrophy (PPMD), regarding the…

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Liberate the Data: Social Health Summit Recap

If you ever have the opportunity to hear Todd Park, Chief Technology Officer at the U.S. Department of Health and…

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A Day of Dialogue with NORD, FDA, NIH

On May 17, I attended the National Organization for Rare Disorders (NORD) Corporate Council meeting in Washington DC. This was…

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Key Learnings from the World Orphan Drug Congress

Siren had the great opportunity to attend the World Orphan Drug Congress on April 13-15. For three days, we were…

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Mentoring Works

I recently took part in a panel discussion on the value of mentoring and its importance for women in business….

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