Adventures in eMarketing

Hello,
Welcome to the June edition of Siren Interactive's newsletter, Adventures in eMarketing.

Many patients with rare disorders are using social media to gather information and connect with others online. But how should pharma appropriately use social media? This is the big question everyone in the industry is struggling with. On July 15, Siren's President and Founder, Wendy White, will be leading a workshop at the CBI Rare Disease Leadership Summit to discuss the impact of social media in rare disorder populations and how pharma can effectively play a role. Register now and join us at the Pre-Conference Workshop, Health 2.0: How Empowering Patients Can Lead to Increased Patient Acquisition.

Also, be sure to check out the top SirenSong blog entries, my reading list, and this month's research insight for relevant information and latest trends in the healthcare industry and eMarketing.

Top SirenSong Blog Entries

The Need For A Rare Disorder Patient Registry
In this post, Wendy discussed the need for a database of people with rare disorders, and how social media can potentially play a role in recruiting these patients.
Disciplined Creativity
Two Key Health Seeker Groups Active Online

Event Highlight

Siren presents "Health 2.0: How Empowering Patients Can Lead to Increased Patient Acquisition", a Pre-Conference Workshop at the CBI 4th Annual Rare Disease Leadership Summit on Wednesday, July 15 in Arlington, Virginia. This workshop will discuss the trend of patient empowerment, the potential of social media to reach small patient populations, and the benefits of partnering with patient advocacy groups. Register for the conference now. Find more information about the event and a promotional code for $300 off registration here.

Siren News

Siren participated in two recent industry conferences where social media was top of mind. Leaders in the industry came together at the HCMA Conference on June 17-19 and the CBI Bio/Pharmaceutical Emerging Media Optimization for Consumer-Focused Marketing conference on June 25 – 26. Read more information about the events here.

MY READING LIST

Drug Firms Jockey for Space Online
The Washington Post
Medicine in the Age of Twitter
The New York Times
Online, 'a Reason to Keep on Going'
The New York Times
Aligning tactics with strategy
eyeforpharma
Using Digital to Address the Needs of Caregivers
eyeforpharma
NIH Launches Drug-Development Program for Rare Diseases
The Wall Street Journal
Most Marketers Ignore Brand Metrics Online
AdWeek
Drug Marketing Drops
eMarketer
FDA Launches Transparency Task Force
Pharmaceutical Executive
Consider the "reasonable consumer," says FDA draft guidance
Medical Marketing & Media


	RESEARCH INSIGHT

A recent study released by the Pew Internet and American Life Project demonstrates that 61% of adults go online to search for health information. The majority of these e-patients access user-generated health information and search for reviews and comments posted by fellow consumers. The study also found that online health inquiries have a positive effect and 60% of e-patients say the information found online affected a decision about how to treat an illness or condition. In addition, mobile devices are changing the way e-patients find and share health information online.


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