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I am thrilled to announce that Siren has published “Uncommon Challenges; Shared Journeys,” a collection of 13 personal stories offering intimate views into the lives of families affected by rare disorders. The narratives reveal how parents – mothers in particular – play critical roles in obtaining a correct diagnosis and appropriate treatment for children with rare diseases. The stories also show how caregivers in the rare disease community seek and use information differently from other groups and have many unmet needs for education and support.

Dr. Timothy Coté, director of the FDA's Office of Orphan Products Development, says, “I recommend this book to anyone who wants to understand the power that’s driving the orphan drug movement.”

The book is available through Amazon.com and all profits will be distributed among the rare disease groups represented in the book. Stories were contributed by: Catherine Calhoun, Jordana Holovach, Janis Marie, Laura Buchanan, Lori and Matt Sames, Julie Loeffler, Terri Granard, Dominique Friend, Nicole and Bill Morris, Joan Bellontine, Dayna Fladhammer and Pat Furlong. To learn more about the authors and their charities, go to http://press.sireninteractive.com.

Ciaran Bellwoar has joined the agency as Siren’s Business Development Director, responsible for business development in the Northeast sector of the country. Ciaran brings more than 10 years of interactive experience to her new role as Siren’s Business Development Director. Before Siren, Ciaran was the Director of Client Relations at I-SITE, a web design and eMarketing firm where she created long-term relationships with mid-sized pharmaceutical companies such as Noven Pharmaceuticals and Purdue Pharma. Learn more about Ciaran’s experience.

With the addition of this position, Siren is pleased to announce the opening of a Philadelphia office. The new office address is: One Liberty Place, 1650 Market Street, 36th Floor, Philadelphia, PA 19103.